Proteus Syndrome

Mandy Sellars, a 34 year old British woman, has a rare medical condition that confuses many doctors, but is most often diagnosed as something like Proteus syndrome (the same condition as so-called “elephant man” John Merrick). The congenital condition has caused her legs to continually and unevenly grow for her entire life.

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Sellars’ legs now weigh over 200lbs (not counting the weight of her torso) which causes her mobility issues, ongoing medical complications, and pain. There’s a short print interview with Sellars here, and more photos here and here.

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The other woman in the above photo also has PS and has had one of her legs amputated to increase her mobility; Sellars plans to do the same at some point in the future. She’s the subject of a number of documentary pieces, and lives in England, where she helps organize fundraisers for the Proteus Syndrome Foundation.
Via Metafilter.

2 Responses to Proteus Syndrome

  1. tonya says:

    just wanted a update on mandy did she keep her legs or not and how is she doing now.

  2. I love Jesus says:

    I just watched a tv program and it said Mandy decided to have one of her legs amputated,I pray she recovers well amen

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